Tuesday, January 26, 2010

I have MS, able-ism

It has been an interesting journey the last few weeks. I was diagnosed with MS on January 22, 2010. I have been living with this diagnosis for less than a week, and living with the possibility of it for about a month. I am so new to this disease, and so new to no longer being able to live my life thinking "I will always be able bodied".

I always had an interest in abelism, I always tried to challenge my own able bodied assumptions and privilege, but I realize now I had no idea. I go places now, and I think, I won't be able to enjoy this the same in the future. Everywhere, is made for able bodied people, I only really have realized that since I have been forced to think about it. In the last three weeks I have been to the beach, farmers markets, walking around town, gardening, hiking, malls, meditation, yoga, public transportation and the gym, and everywhere I have been I have had to face a sadness and mourn the fact that unlike other people I know, I will not always be able to enjoy these things the way I can now.

The reality is the world is not made to be friendly to those whom are disabled. I suppose I knew this in a loose sense, but not to the extent I see it now. I still know if from a body that is working fine, minus whats going on in my brain... My immune system is working hard, at trying to make me disabled, for the rest of my life. Sometimes that is hard to deal with.

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